Team Grant: Pediatric Rare Disease Clinical Network

Rare Diseases (RDs) constitute an under-recognized global health priority. In fact, notwithstanding their name, RDs are far from rare. The population prevalence of RDs is reported at 3.5-6.0% and affect as many as 446M people globally.

This investment will catalyze the creation of a Pediatric Rare Disease Clinical Network to streamline rare diseases clinical research across Canada and to facilitate the collaboration among researchers across pillars, people with lived and living experience (e.g., patients, family, caregivers), health care providers, industry, policy and regulatory bodies.

There is one grant available valued at $20M dollars for five years.